Study for the Development of Outcome Measures for Hidradenitis Suppurativa (ReVAMP)

Study PI: Joslyn Sciacca Kirby, MD, Penn State University, Penn State Milton S. Hershey Medical Center

Project Summary: The purpose of this 4-year study is to develop validated patient- and clinician-reported outcome measures for hidradenitis suppurativa (HS) to improve the way HS outcomes are measured.

Study Design: Mixed methods including focus groups, cross-sectional methods, and a prospective study will be used through the course of this study.

PaTH Partners: pending

  • Geisinger Health Care System (Christen Mowad, Site PI)
  • Johns Hopkins University and Johns Hopkins Health System (Ginette Okoye and Noori Kim, Site co-PIs)
  • Penn State University
  • University of Pittsburgh, UPMC (Laura Ferris, Site PI)

Sponsor: Agency for Healthcare Research and Quality

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